Throughout the CASTLE study, we’ll work with children, parents, doctors and nurses to choose the best ways to measure health and quality of life for children with epilepsy. The research will also include talking to parents and children about their experiences in relation to sleep, taking medication, learning and how taking part in the study has impacted on them. To find out more about the studies taking place, please select form the options below.
Core Health Outcomes In Childhood Epilepsy (CHOICE)
The Core Health Outcomes In Childhood Epilepsy (CHOICE) study is seeking consensus agreement on which outcomes are most important to measure for children with the most common type of epilepsy. We need families of children with rolandic epilepsy, clinicians and other people working with children with rolandic epilepsy to participate in an online survey to select the core outcomes.
In this part of the study, children and parents are asked to tell us about their experiences of living with rolandic epilepsy. We’re interested to learn about their experiences of taking the study medication, how they/their child is sleeping, and the impact of epilepsy on them/their child’s learning.
We want to find out, from parents, what they think we should include or leave out of our sleep intervention. Once we know this we will develop an online sleep intervention programme especially for parents of children with epilepsy and then ask parents what they think about it and whether they think it might work.
We have designed this clinical trial in such a way that everyone has an equal chance of being treated with one of the drug/non-drug options, as well as having a 50:50 chance of trying our sleep package. Just like with the drugs, we don’t actually know if our sleep package will actually help young people with epilepsy get to sleep.