September 16, 2020

New publication: Mapping epilepsy-specific patient-reported outcome measures for children to a proposed core outcome set for childhood epilepsy

We have published a brand new paper ‘Mapping epilepsy-specific patient-reported outcome measures for children to a proposed core outcome set for childhood epilepsy’ in the journal Epilepsy & Behaviour. The paper describes…
Project News
June 7, 2019

European Academy of Childhood Disability (EACD) Conference – Paris 2019

The Core Health Outcomes in Childhood Epilepsy (CHOICE) work was recently presented as a poster at the EACD conference in Paris. The EACD is an annual conference reaching >1300 patients…
May 13, 2019

CASTLE Advisory Panel Family Day at Knowsley Safari Park

It was such a joy to bring together some of the CASTLE advisory panel members from the North of England at our family day held in March.  Advisory panel members, their…
Core Health Outcomes In Childhood EpilepsyResearch
April 26, 2019

Core Health Outcomes in Childhood Epilepsy – Epilepsia publication

We have published a brand new paper 'Core Health Outcomes in Childhood Epilepsy (CHOICE): Development of a core outcome set using systematic review methods and Delphi survey consensus' in the…
EventsProject News
March 27, 2019

Edge Hill University turns purple in honour of Purple Day 2019

Edge Hill University is one of the collaborating institutions of the CASTLE study. In honour of Purple Day 2019, the university went purple, and remained so overnight. The team at…
March 27, 2019

Blog post – CASTLE online sleep intervention

To mark Purple Day - Georgia Cook, Postdoctoral Researcher on the CASTLE study, blogs about the importance of sleep to children with epilepsy. Please use the link below to read…
Project News
March 26, 2019

Patient Perspectives on CASTLE

The perspectives of families are central to our  NIHR funded epilepsy research study ‘CASTLE’.  Read how Janet and Deborah are co-investigators who bring expertise through their own and their children’s…
Project NewsResearch
March 26, 2019


Today is the launch of the CASTLE clinical Trial! There will be lots of upcoming blogs and posts, so watch this space! Below is the official press release for CASTLE:…
Project News
March 15, 2019

What Every Parent Should Know About Rolandic Epilepsy – Booklet

We are excited to announce the publication of a new booklet. The booklet is for parents of children with rolandic epilepsy.   The booklet is authored by: Professor Deb Pal -…
EventsProject NewsResearch
March 15, 2019

CASTLE Trial National Investigators Meeting

On Monday 11th February the CASTLE team held a National Investigators Meeting at the Grange Holborn Hotel in Central London. More than 70 professionals from 27 UK NHS sites attended…
February 18, 2019

CASTLE Winter ‘Family Engagement Day’

Author: Dr Samantha Lyle (Family Engagement Officer for CASTLE) As the Family Engagement Officer for the South it was my utter pleasure to host a family day for the CASTLE advisory…